This week is a milestone for me, and it’s kind of hitting me hard. On June 12, 2017, I spent the entire day at Barnes Jewish Hospital knocking out all of the testing and meetings for my pre-transplant evaluation. They usually do it over two separate days, but then I still worked full time, so they agreed to do it in one day to minimize time taken off.
Over the last couple of weeks, I’ve had some great conversations in person and online with other spoonies about illness, particularly invisible illness, and interacting in public. What’s normal?
I’ve noticed the reactions when I go out since I’ve had the broken foot. I feel like I take up a considerable amount of space and time Continue reading “Making it “Normal””
I blame a wish: I sighed to myself how nice it would be to take a week off and sit on the couch watching tv. Then I had a little fall in the house three weeks ago and hurt my right foot. I thought maybe RICE ( Rest, Ice, Compression, Elevation) would take care of the issue, but as the day progressed, that seemed less and less likely. Finally, I drove myself to urgent care (since of course it was on a Sunday.)
After x-rays, the doctor came back into the exam room with a diagnosis and a fresh Ace bandage. “We think it’s just sprained, but you may want to have it rechecked in five days.” I limped out, filled my prescription for pain meds at the pharmacy next door, and drove home. It looked like I’d take a few days off work after all, but this wasn’t exactly what I had in mind. Enter Netflix, no chill. Continue reading “Up With the Good: Five Lessons From a Medical Leave’”