I was fortunate enough to grab an appointment with my awesome rheumatologist this week. When she saw me she was both amazed and concerned about the intensity of my swelling and general puffiness. She acknowledged how miserable I am and we decided to increase the prednisone drastically for 15 days, in order to break my hideous flare. Once we get confirmation of a negative tuberculosis test, I can start Benlysta . She also agreed to fill out whatever paperwork I need to start disability proceedings. That’s a relief, since I can no longer work. Continue reading “On Fat Pants and Caftans”
Last week I finally made a tough decision: I gave notice at work.
Lately my pain and exhaustion have both gotten out of hand. Despite changing jobs yet again, all my diagnoses caught up with me. While I could give it my all at work at the vet clinic (cats are a hell of a lot easier on a broken bodied vet tech) for a little over half of a shift, but then I had nothing left for my family. Continue reading “On Work, School, and Generally Being a BAMF”
For years I had a skewed idea of the path I should follow in life. I thought I had to accomplish big things and make monumental changes to the world around me in order for my life to matter.
This was a recipe for massive discontent and frustration. As my health situation changed and my ability to make the kind of contributions I wanted waned, I grew increasingly anxious and depressed. When my self worth is tied into my perceived output and career goals, I feel like a failure when I “underachieve.”
Why so much pressure? Continue reading “Finding and Cultivating Joy”
A couple of months ago, I asked my doctor for a prescription to help the awful anxiety that began to crush me. The Xanax helps immensely, but it’s not a good long term option.
Last month I had my yearly well woman exam. After talking with my therapist and nephrologist about safe options, I ran it past my gynecologist. All of them agreed Effexor would be a safe option for me to try with the fewest side effects. My fantastic gyno called in the prescription for the generic extended release version. Due to my poor kidney function and slow med clearance, I wanted to try the lowest dose possible. 37.5 mg capsules, here I come. Continue reading “Mother’s Little Helper, Pt. 2: Moving the Elephant”
I had three extremely powerful moments in healthcare this week, moments where I was seen a human being and not just a medical puzzle with too many parts. Continue reading “When They Really See You”
What a drag, it is getting old. Over the last several weeks, my smile slipped. Scratch that, it expatriated to a foreign shore with no return date. I realized I needed help when the anxiety overran my life and I had full blown panic attacks.
Not this, not now. Since medical cannabis isn’t legal in my state (and forbidden for transplant hopefuls even in legal states) it was time to talk prescription pills.
This week is a milestone for me, and it’s kind of hitting me hard. On June 12, 2017, I spent the entire day at Barnes Jewish Hospital knocking out all of the testing and meetings for my pre-transplant evaluation. They usually do it over two separate days, but then I still worked full time, so they agreed to do it in one day to minimize time taken off.